Wednesday, November 19, 2014

More on Egolessness

Doctor, doctor won't you please prescribe me something
A day in the life of someone else?
-- P!nk
I have a sociological understanding of people but it is startling to me when I see a single person so in touch with one's ego while being out of touch with everyone around her -- a common example is a person talking on her mobile phone when ordering in a Chipotle-type restaurant, as if the time of the people in line behind her (and the efficiency of the workers) never crossed her mind. Another is a person making obviously illegal maneuvers in a car across lanes and around (or over) barricades with the expectation that although he does not have the right-of-way, he expects everyone else in traffic to yield the right-of-way to him (and, stupidly, on some level assuming the road conditions in addition to everyone's brakes, tires, other vehicle systems, and perception-reaction times are sufficient to avoid collisions or worse). I suspect the last time I could tap into that level of self-absorption was during my Terrible Twos.

Certain experiences have made people-watching dull for me. I people-become. Sometimes I come up with a great impersonation and sometimes I have greatness thrust upon me. I have honed my Self-Effacing, Ice-Breaking, Peace-Making, Mind Reader act to near perfection and use it in most social situations. I do not think I can read minds, of course, but I can tell with high precision when someone just wants to talk about themselves and/or is looking for some empathy. I usually make an effort with weary checkout clerks and waitstaff and speak their name as I pay them some compliment (I am reminded of Dale Carnegie who wrote: “Remember that a person’s name is to that person the sweetest and most important sound in any language”). I always make an effort with anyone handling anything I am about to consume -- Paula Poundstone, remarking about customers when she waited tables at an IHOP: "When people would be rude to me, I would touch their eggs. They didn't know; I felt better; it worked out." (I hope this does not make any germophobes reading this avoid breakfasty establishments).

I have radically accepted society as it was and as it is. I have seen the incredible breakthroughs and the gut-wrenching genocides. The promising democracies and the promises of dictators to their nations (and the not insignificant numbers of people governed by one that want to be governed by the other, grass being greener and all that). The peace-makers and the war-mongers. The mutually-exclusive groups that claim to have the Truth and the wise people who nod at them politely then get back to the tasks of recording, archiving, and revising the repositories of knowledge as new information becomes available. Note I did not say I liked or approved of society, just that I have accepted it as is.

Everyone has the potential to improve society, the world, and beyond if we rely more on our brains and transcend primal instinct that has outlived its usefulness. So the next time you refuse to spend the 20 seconds required to return your shopping cart to the cart corral because your time is way more valuable than that of other people, remember that we have abundant resources and so we do not have to behave like cavepeople in life-or-death situations -- we have evolved. What do you say, does it make sense to rationally act evolved as a member of society or to REact on impulse, out of control, like an animal?

Monday, November 17, 2014

Winter Poem

Due to a therapy group that I wanted to attend today being full by the time I arrived, I attended a different sort of therapy that uses one's creativity. I wrote a poem that I rather liked on the topic of winter so I thought I would post it -- I do not plan to have posts like this very often:

Trees with voids
Whistling replaced with howling
Between gusty blusts
There is still no silence, no stillness
The forest does not die
It creeps ever so slowly
And the creaks, crunches, rustles
Push the rotting stuff to become
A smorgasbord for the fungi
For the microbes
For the unsung heroes of
Everything

Saturday, November 8, 2014

Depressive Realism

And we'll accept the things we cannot avoid, for now
For now, for now, for now
But only for now (for now)
Only for now (for now)
Only for now (for now)
Only for now
Only for now (for now there's life)
Only for now (for now there's love)
Only for now (for now there's work)
For now there's happiness
But only for now (for now discomfort)
But only for now (but now there's friendship)
Only for now (for now)
Only for now, only for now
Sex is only for now
Your hair is only for now
George Bush is only for now
Don't stress, relax
Let life roll off your backs
Except for death and paying taxes
Everything in life is only for now
Each time you smile (only for now)
It'll only last a while (only for now)
Life may be scary (only for now)
But it's only temporary
Everything in life is only for now
-- Avenue Q Soundtrack
There is a theory, criticisms of which I will set aside for the sake of discussion here, that depressed people make more accurate appraisals of the world than non-depressed people do. This "depressive realism" may be the one thing that depression has going for it.

A positive mental attitude. Always looking on the bright side. A sunny disposition. Seeing the best in people. Wearing rose-colored glasses. With the possible exception of the last term, these are descriptions of behaviors of people who see reality with a good but nevertheless biased worldview. But reality is good and bad. And everything between. So consciously or subconsciously focusing on any part more than the rest of reality can understandably lead to inaccurate appraisals and memories.

Friday, November 7, 2014

Vulnerablity

Today I learned that the emotion of love can make a person feel invulnerable. I thought that was odd since love has allowed me to feel and be vulnerable -- but that probably requires me to feel trust, too. I know vulnerable is not necessarily the opposite of invulnerable but I just considered them opposites for the sake of discussion.

I also met a couple counselors/therapists while inpatient who love Brene Brown since I mentioned how in at least one of her Ted Talks she discussed how vulnerability is a strength and the counselors' faces lit up.

Different regions of the US are known for preferring some emotions, or no emotions, over others. But if vulnerability is a strength as I suspect it is, maybe the west coasters, specifically the hippie sorts there, are closer to having a healthy/appropriate approach of embracing emotions as they are and not judging anyone for their emotions. I always felt hippies got some things right but was not really sure what -- perhaps their acceptance of all emotions and the related vulnerability somehow resonated with me then and now I know there is wisdom in that. Pardon my stereotyping but I thought it would get my point across easier.

Thursday, November 6, 2014

Separation From Loved Ones

Being separated from loved ones while inpatient for mental health issues is weird. I am suddenly among patients with similar or relatable issues but with different life circumstances which, in a way, is comforting since it underscores the genetic or at least the biological component for these issues. And if I see other people with depression getting "better" it gives me a bit of confidence that I can, too.

A couple people today talked about their desire to fight their depression and to conquer it. I wonder if these war-like metaphors apply to mental illnesses. Seems to me that first you accept the reality of having depression then educate then practice coping skills the rest of your life. Reduction of symptoms may come with meds but conquering depression is like conquering freckles.
Getting very sleepy so let me just say damn my literalist mind! Since soap was not included in "Each client is responsible for providing personal hygiene products such as shampoo, toothpaste and deodorant" as stated in the copious reading materials and forms I have read through to become inpatient, I thought soap would be provided by the facility. I was wrong so I guess I will just be using shampoo during my showers for a few days. :(

Wednesday, November 5, 2014

I Am Inpatient, Hear Me Roar

Oh yes I am wise
But it's wisdom born of pain
Yes I've paid the price
But look how much I gained
-- Helen Reddy
I am fairly certain that most of my blog posts will be shorter as I am inpatient for a while. A long while. I will not have as easy access to song lyrics so the format of most posts will necessarily change.

If you are not familiar with someone with long term or acute mental health issues, you may not know that there are different sorts of inpatient facilities. One distinction is some handle patients on a voluntary basis, some on an involuntary basis, and some can handle both. Another distinction is whether it is a locked-door facility or an unlocked-door facility or a mix. As I continue to blog it may become more clear what type I am in but for right now it is not something I am going to share which may make little sense to some readers since I write this using a pseudonym but that is my decision for now.

Friday, October 31, 2014

7 Favorite Assumptions

There is a star in the sky
Guiding my way with its light
And in the glow of the moon
Know my deliverance will come soon
There is a sound in the calm
Someone is coming to harm
I press my hands to my ears
It's easier here just to forget fear
And when I squinted
The world seemed rose-tinted
And angels appeared to descend
To my surprise
With half-closed eyes
Things looked even better
Than when they were opened
--Depeche Mode 
It is good to challenge assumptions. It is wise to challenge assumptions. But are you able to effectively, actually, challenge your own assumptions? I am going to be frank about my seven favorite assumptions and be as critical about them as I am able. To that end I plan to pick one each day of this week and set it aside as if it were 100% false or did not exist as part of my worldview. I think it should be enlightening.

My favorite assumptions, in no particular order:

Wednesday, October 29, 2014

Metapost: Comments Working?

I learned that comments on this blog are not always working but I do not know why. I confirmed my settings which should allow comments. For the few people in real life that know me, let me know when you are unable to post comments -- feel free to try commenting on this post to see what happens.

Alive With The Sound Of Suicidality

On days like this
In times like these
I feel an animal deep inside
Heel to haunch on bended knees
Living on if and if I tried
Somebody send me
Please
Dream wars and a ticket to seem
Giving out and in
Selling the don't belong
Well what do you say
Do you have a word for giving away
Got a song for me
(Sing)
(Sing)
Hey now, hey now now, sing This Corrosion to me
Hey now, hey now now, sing This Corrosion to me
Hey now, hey now now, sing This Corrosion to me
Hey now, hey now now, sing
I got nothing to say I ain't said before
I bled all I can I won't bleed no more
-- The Sisters of Mercy
For months I have been asking for, pleading for, more help. I went way outside my comfort zone to get all the paperwork filled out and signed to get into the premier mental health facility in the region -- the process would have been drawn out if I let the normal person who advocates for me in her spare time do it so I spent many hours getting to all the doctors' offices to make sure it was done quickly. Then it took more than a week longer than expected to get in for an assessment. Shortly after my assessment I was informed there was approximately a two week wait to get in but I was on the waiting list. Two weeks later I learn it still "will be a couple weeks". If I did not know better I would look at this data of getting put off a week, then a couple weeks, then a couple more weeks -- the trendline indicates the delays are getting longer so at this rate I will never get in. And all the parties involved know I have suicidal plans!

Granted I was not guaranteed to have treatment start quickly but the material I was asked to read during my assessment stated "accepted clients can potentially begin treatment within 48 hours" and my assessor told me I was expected to begin treatment there, once accepted, within 48 hours. My poor verbal memory does not allow me to exactly quote what my assessor told me but I know damn well that not only was my acceptance indicated but also that I was to prepare myself to be a resident there within 48 hours. I had quite an anxious reaction to her saying that because, for one thing, I did not have the suggested 7 days worth of clothes to pack and while a person in a normal state of mind might be able to buy/wash clothes quickly and swiftly get everything else in life put on pause for potentially months (family/pets, work/projects, relationships/friendships, holidays/vacations, and various other appointments and expectations), my anxious state made even deciding where to buy plain t-shirts feel like an insurmountable task.

Saturday, October 25, 2014

After Transcranial Magnetic Stimulation

And I still find it so hard
To say what I need to say
But I'm quite sure that you'll tell me
Just how I should feel today
-- New Order
So I completed a normal course of deep transcranial magnetic stimulation (dTMS) treatments for depression. The magnetic fields were focused on the part of the brain that clinical trials have shown can improve mood (decrease the symptoms of depression) on a timescale of weeks to months. It did not have a noticeable impact on my mood. It did cause some unpleasant side affects that were not that common (compared with those observed in the clinical trials) but manageable.

There appeared to be an increase in the amount I wanted to express myself which I attribute to the treatments. I wanted to write more (and blog more) but I had trouble staying focused long enough to write something that others might want to read. I did talk to more friends and family than usual about a wide range of topics -- not the boring small talk people fall into comfortably, either. I tried my hardest to be vulnerable, to say what too many regret never saying. No, I don't want to talk about the weather. Or a sports team. Or a hobby that is only meaningful to one of us.

Friday, October 24, 2014

A Life Worth Living, Goal?

Someone take these dreams away
That point me to another day
A duel of personalities
That stretch all true realities
-- Joy Division
It has taken me years to be able to come up with what makes my life worth living. I had a bit of a breakthrough during the last week and maybe I can record it in some sort of goal.

I want to reduce the sadness I experience when thinking about, particularly when remembering, traumatic events. Trauma hits me often in waves of increasing severity that seem like they will never stop. Trauma that happens to me, trauma that happens to loved ones, trauma that happens to strangers -- continuing the water metaphor it all wells up in me and I cry until the tears and snot stop flowing. After crying myself out I think the next stage is being distracted or the pressure will just build. But the distractions are temporary and I wonder if I heal at all because the next time I recall a trauma, it seems just as intense as the last time (even though I rarely have flashbacks).

Thursday, October 9, 2014

Forty-Two

I don't know what I am I don't know where I've been
Human junk just words and so much skin
Stick my hands through the cage of this endless routine
Just some flesh caught in this big broken machine
-- Nine Inch Nails
The long dark tea-time of the soul looms in 42 days. It is my understanding that this is when I learn the ultimate question of life, the universe, and everything but it would be nice to have that knowledge now. Well what's 42 more days compared with 7.5 million years...as long as the gnab gib is not nigh.

Stephen Fry knows. He knows why the answer to the question is 42 and the reason is "fascinating, extraordinary and, when you think hard about it, completely obvious." I am freaking jealous.


Wednesday, October 8, 2014

Comfortable In Society

I want to take you in my arms
Forgetting all I couldn't do today
Black celebration
Black celebration
Tonight
To celebrate the fact
That we've seen the back
Of another black day
I look to you
And your strong belief
Me, I want relief
Tonight
Consolation I want so much
Want to feel your touch
Tonight
Take me in your arms
Forgetting all you couldn't do today
Black celebration
I'll drink to that
Black celebration
Tonight
-- Depeche Mode
I should make it clear that I am no proponent of going off meds (my shorthand for antidepressants and the like). I have been on meds for over 15 years with only one short break, and that break was agreed upon by my psychiatrist, some other medical professionals I consulted, and family members. AND my psychiatrist directed me how to step down my meds and in which order so it would be the safest and have the fewest side effects. AND my psychiatrist and other medical professionals monitored me during and after. This was done for a few reasons but the main one was I wanted to find my baseline mood.

Monday, October 6, 2014

Hope

You with the sad eyes
Don't be discouraged
Oh, I realize
It's hard to take courage
In a world full of people
You can lose sight of it all
And the darkness there inside you
Makes you feel so small
But I see your true colors
Shining through
I see your true colors
And that's why I love you
So don't be afraid to let them show
Your true colors
True colors
Are beautiful like a rainbow
-- Cyndi Lauper
There is a fundamental disconnect in my brain when it comes to hope. I know the placebo effect helps some people actually get better. I know prayer makes some people feel better and, so, with the mind-body connection, at the very least can work like the placebo effect. I know a positive mental attitude can be the only tool that will bridge the gap between success and failure.

But when it comes to medicine there has to be an actual, quantifiable difference between a given treatment's effects and a person's belief that a "snake oil" will lead to the effects. So I find it odd that a suggestion, in any medical field but particularly in mental health, would be to remain positive that a given treatment will help. It is not isolated -- every mental health professional I have worked with in one way or another has emphasized the importance of staying positive. If I were able to stay positive, I would not need help for depression!

Monday, September 29, 2014

Egoless

If you want a lover
I'll do anything you ask me to
And if you want another kind of love
I'll wear a mask for you
If you want a partner
Take my hand
Or if you want to strike me down in anger
Here I stand
I'm your man
-- Leonard Cohen
I have worn the People-Pleasing Mask, maybe the same thing as the Society-Pleasing Mask, for so long that it has become my primary mask. It has also become second nature to try on masks that others wear to see the world from their perspectives. For example: a bit of research and bang I become, temporarily, a hardcore pro-lifer. A bit more research and bang I become a hardcore pro-choicer. So when I hear, say, a pro choice proponent say, "I just can't understand how anyone can be pro life...", I think that is odd because I find it easy to understand and often sympathize with all sides and their nuances.

When I began developing ideas for a blog I thought of writing as if I were genderless (and attempt to write as bias-less, more on that later) because I have done just that when playing online multiplayer games where people from all walks of life role-play as characters in online worlds created by programmers. It fascinated me when other players would fixate on determining whether I was biologically male or female in real life -- frequently others would conclude if I played aggressively then I must be male but if I played diplomatically I must be female. And this is in the era where most gamers are familiar with sayings like "The Internet: where men are men, women are women, and little girls are FBI agents."

Thursday, September 18, 2014

Transcranial Magnetic Stimulation (TMS)

So next time you're in a jungle fight
And you feel the presence near
Or hear a voice that in your mind will lie
Just be thankful that you're not alone
-- Stan Ridgway
TMS tweaks electricity in a person's brain. This causes short-term activity in the brain that has been shown to have longer-term effects in some people. The goal is to decrease troublesome symptoms when the proper parts of the brain are tweaked. That's the summary of how TMS can treat illnesses like major depressive disorder.

In a bit more detail, Transcranial Magnetic Stimulation (TMS, which may also abbreviate the devices "Transcranial Magnetic Stimulators" which provide said stimulation) is a noninvasive way to have neurons fire (or not fire) more (or less) in the targeted region of the brain. It is noninvasive in that the magnetic fields are started outside of the body by a device, typically stationary in a psychiatrist's office, with part of it held to the patient's head. The magnetic fields are directed to pass through hair, skin, skull, etc, then up to several centimeters into the brain without the complications normally associated with electricity contacting the body or invasive anesthesia/surgery. In the brain the magnetic fields "work" on the neurons. How magnetic fields have an influence on neurons and the nervous system in the short-term requires a fair amount of electromagnetism and biochemistry and that, while fascinating, I will not attempt to delve into in this post. How doing this over and over can help some people for weeks or longer after TMS treatments are concluded is a matter of continuing study.

Saturday, September 13, 2014

Ketamine Experience Part 5 of 5

So I ask again
Am I so alone and full of pride
To never speak out
This is my world, this is my world
Don't tell me now
I won't feel those words, I won't feel the lies they tell
Can you hear my scream
It's for everyone, for everyone
I am so afraid of living in oblivion
I am so afraid of living in oblivion
-- Anything Box
In Part 4 I continued my "report" to my patient advocate. It continues as shift change begins...

I bided my time until shift change from day to night, watching more of the dark-themed Criminal Minds marathon. I overheard my nurse on a few occasions say in a joking tone that if she seemed mean it was hormones from being pregnant. Standing in my sock feet with the blanket around my shoulders/arms, I made my way to the middle of the nurse station and eavesdropped during the shift change. I learned that the census at shift change was equal to the number of inpatient rooms (the rooms had giant sequential numbers painted on them). If the names on the cards next to the doors were still accurate, some of the rooms had two patients in them. I was then approached by a night nurse who asked if I needed help, taking initiative I had seen no day shift nurse take. I said I wanted some help but I was waiting until after shift change. She introduced herself and asked me my name and I responded. She said that she was my night nurse and had time to help me now if she could. I practically wept as no one had treated me with such kindness since arriving at the facility. I told her that I had requested with day nurses/doctors that I be put in my own room and that I was leaving first thing in the morning and promised I would not make a mess. She went to a computer to see what she could do.

Wednesday, September 10, 2014

Ketamine Experience Part 4 of 5

TV, is it the reflector or the director, does it imitate us or do we imitate it
Because a child watches 1500 murders before he's 12 years old
And we wonder why we've created a Jason generation
That learns to laugh rather than to abhor the horror
TV is the place where armchair generals and quarterbacks
Can experience first hand
The excitement of video warfare as the theme song is sung in the background
Sugar sweet sitcoms that leave us with a bad actor taste
While pop stars metamorphosize into soda pop stars
You saw the video, you heard the soundtrack, well now go buy the soft drink
Well the only cola that I support
Would be a Union C.O.L.A., cost of living allowance
On television, the drug of the nation
Breedin' ignorance and feedin' radiation
On television, the drug of the nation
Breedin' ignorance and feedin' radiation
-- The Disposable Heroes of Hiphoprisy
In Part 3 I continued my "report" to my patient advocate. It continues after being prepared for my first slow-and-steady dose of ketamine...

The Ketamine pump was started for my infusion. The infusion was pleasant and after an hour or so of observation someone brought me some juice, the first food/drink I had had since midnight. I was also offered a blanket which I accepted and wrapped over my shoulders and around my bare arms since I suspected it would still be cold down in the inpatient area. Hard to say when but I was escorted in a wheelchair down to eat my lunch at a table by myself near the TV. I transferred myself from wheelchair to table as my nurse heated my main plate up then I made the meal last for an hour. A Criminal Minds marathon was on the TV and remained on for hours. Note the TV remained on through every meal I witnessed even though my nurse said the rules were the TV had to be off during meals. During this time I saw multiple patients (not visitors, I kept tabs on every one there and could determine who the visitors were when they left) texting on phones and tablets while the nurses/techs seemed oblivious. Also there was one patient who was allowed to keep her shoelaces – I know she was not discharged Monday night because she came and talked to me at breakfast the next morning, wearing her laced shoes each time I saw her. The message received from all this: we have rules, no you can’t have a copy of them, ask if you want to do something, we will threaten you with rule enforcement sometimes, and we are just here until shift change – cue me sounding like a broken record: not confidence-inspiring.

Sunday, September 7, 2014

Ketamine Experience Part 3 of 5

Don't worry about a thing
'Cause every little thing gonna be all right
Singin' don't worry about a thing
'Cause every little thing gonna be all right
-- Bob Marley
In Part 2 I continued my "report" to my patient advocate. It continues after being left alone with nothing to do...

Eventually Male Doctor 2 (in training?) sat down with me and asked if I had any questions. I asked what was the next step for my treatment since the morning talk show that the nurses had increased the volume for on the TV was growing increasingly inane (I question the value of gossip about celebrities in general, this goes double for people with mental health issues severe enough to be inpatient). Most of his answers were vague but eventually he decided to speak to me in private so we went into my room. He roused my sleepy roommate and asked for him to step outside to give us privacy and my roommate left. I do not recall how many times I asked to have my own room but I made sure every doctor and most nurses heard my request and each time I tried to explain the importance of my request without breaking down in tears – I am actually curious how many of these requests were actually recorded in my chart (a couple doctors told me “off the record” that I might have better luck with my request with the night shift). First I asked if there was anything I could say that would keep me as an inpatient past tomorrow morning and he indicated probably not unless they thought I was a threat to myself or others. So I spilled my guts about everything except my passive suicidal thoughts – I needed help but I knew that the longer I was inpatient there, the more depressed and anxious I would get. I cannot underscore how backwards this situation was – I was there trying to do what was right for my mental health but the deck was so stacked against me and I felt my months of planning and therapy leading up to this were not just wasted but being ruined by the most unhealthy environment I have ever been in.

Thursday, September 4, 2014

Ketamine Experience Part 2 of 5

And they're coming to take me away ha ha
They're coming to take me away ho ho he he ha ha
To the happy home with trees and flowers and chirping birds and basket weavers
Who sit and smile and twiddle their thumbs and toes
They're coming to take me away ha ha
-- Napoleon XIV
In Part 1 I provided some background and began my "report" to my patient advocate. It continues after I had voluntarily checked into a psych hospital...

The admissions woman eventually found a way to get to the inpatient area, punched in codes at a couple different doors, and before I was inside a minute a tech (I think she was a tech as she was wearing a different color than what I understand nurses wear) asked if the small bag I was carrying had my stuff in it. I said yes then she looked in my bag to find my prescription bottles, a tube of lip balm, and a cord to charge my mobile phone. She brusquely said that she needed to take all of this from me, and my shoelaces, as a safety precaution. Before I could ask what the policy was for getting access to it, she was walking away with my bag. I then noticed the admissions woman had disappeared with no introductions, never mind handoff. Quite panicked at this point, I told the nurses/techs at the nurse station that I was confused and needed help. Different women at the station tried to calm me down in condescending tones asking what the matter was, what did I want. My wife was with me and saw that I was panicked but she knew the only thing that would help me calm down was information, not condescending questions. I continued to express myself as best as my sweaty, anxious, baffled self could.

Monday, September 1, 2014

Ketamine Experience Part 1 of 5

You can't hide the pain
I can see it scrawled on your empty face
And I feel the hurts
It's in the words you say, they make me want to
Scream out to the world
For taking life for granted and I know
You are by my side
When I turn to hear you cry
I am so afraid of living in oblivion
I am so afraid of living in oblivion
-- Anything Box
In terms of this blog, I don't know how important it is to say I am male but it is somewhat important for context in this long blog entry. I wrote much of this entry in order to present it to the contact assigned to me as a patient advocate for the healthcare company through which I arranged to try ketamine infusions as a depression treatment. I first read it to my assigned patient advocate then I provided the full document to help investigations into my experiences. Identifying details have been obscured in this version.

I am generally easy-going. I am not litigious. I am not looking for apologies. I am seeking clarity and understanding. I want healthcare professionals with the power to address concerns up to and including culture change to hear what happened to me. I am aware that verbal memory is not perfect so I do not have a lot of verbatim quotes from healthcare staff but this is an honest account of how things appeared to me, a sick and desperate patient, regarding the Ketamine program. I know I am expecting a lot to ask that you put yourself in my shoes as you read this.

Tuesday, August 26, 2014

Agony, Anguish, Misery, Suffering, Torment, ...

We are, we are, we are but your children
Finding our way around indecision
We are, we are, we are rather helpless
Take us forever, a whisper to a scream
-- Icicle Works
I have told multiple doctors and related healthcare professionals that I need help, that the help I have received has not been sufficient, that the help I AM receiving isn't either, and that I don't care what insurance covers -- I will figure out a way to pay out of pocket but give me what I need now. And if what I need now is going to take weeks to have an effect, well let's take the first step today and help me know what the next step is and it better damn not be an appointment in 4-6 weeks. I have spent decades in this system of small course corrections every month or two, managing the odd crises here and there as they arose, and it is no picnic.

Other than short term improvements measured in days, weeks when I am lucky, this system has brought me to the point where I have oodles of coping skills that I apply to get me through my day, but what should I do the next day? A life of just getting through the day, for years, is a torture I would not wish on my worst enemy.

Friday, August 22, 2014

Advice From A Psychiatrist

The further we go and older we grow
The more we know the less we show
-- The Cure
I have averaged four psychiatrists per decade. Most of them I had to change due to moving out of the area but two of them I changed because they seemed to offer very little face time before tweaking medications. So I suppose I was a good advocate for myself since I know I need more than a doctor who tries to rush me out of the office.

The quasi-defined term "treatment-resistant" is an understatement for my depression and twice I have been treated by multiple psychiatrists. The first period was when my long-term psychiatrist was handling most of my care/medications while a temporary psychiatrist treated me with electroconvulsive therapy. The second period was similar but the temporary psychiatrists were treating me with ketamine infusions.

Tuesday, August 19, 2014

Go Back To The Emergency Room To Manage Pain? Part 2

Well I don't believe in your institutions
I did what you wanted me to
-- Nine Inch Nails
In Part 1 I described how I was faced with the issue that the painkiller prescribed by the Emergency Department (ED) doctor that was most beneficial was a narcotic and was going to run out before my orthopedic doctor appointment for a pinched nerve.

My options were:
  1. Do nothing, run out of prescribed narcotic, and hope for the best using OTC painkillers until my appointment with a specialist (exacerbating my anxiety/depression to possibly dangerous levels)
  2. Keep calling appointments phone number to see if any orthopedic doctor had an opening (and explain my decades-long experience with depression, maybe even attempting to get squeezed into an earlier appointment by exaggerating and claiming the situation was pushing me toward being actively suicidal)
  3. Return to an ED to ask for some sort of painkiller, probably the same narcotic
  4. Visit my general doctor to ask for some sort of painkiller, probably a narcotic
The stage was set by days of interrupted sleep, mostly controlled but constant pain, and chronic low self-esteem causing me to question whether I deserve effective painkillers or even help from doctors. I forced myself (using Opposite Action for anyone familiar with DBT lingo) to call the appointments number a few times to check if any patients had cancelled which might have made earlier appointments available to me. But this is an absurd system to begin with: a cancellation could happen at any moment...should I seriously be tied to my phone redialing every few minutes to be the first lucky patient to grab an opening? If not every few minutes, maybe every hour? Every couple hours? Daily? On some level I wanted to call every 5 minutes to see if I could annoy every appointments person in the system -- the squeaky wheel gets the grease, right?

Monday, August 18, 2014

Go Back To The Emergency Room To Manage Pain? Part 1

I will let you down
I will make you hurt
-- Nine Inch Nails
I live in a metro area with millions of people and "consume" most of my healthcare from probably the largest, best-known, and most-acclaimed/awarded healthcare company in the area. If I need to see a specialist, there are usually several to choose from within easy driving distance and a single phone number to make an appointment with any of them.

A while ago on a Saturday I did something (moved furniture for a few minutes) that gave me all sorts of arm pain. After a couple nights of restless sleep due to OTC painkillers not helping enough, I went to the main Emergency Room, technically Emergency Department (ED), of the aforementioned company early Monday morning. After all, I had no idea what sort of specialist I needed and the pain combined with lack of sleep was not doing my anxiety/depression any favors so waiting for my general (primary care) doctor's office to open did not seem wise as they could be swamped with patients on Mondays. [Mental note: avoid moving furniture on weekends.]

Sunday, August 17, 2014

Hate Phone Trees?

Feeling unknown and you're all alone
Flesh and bone by the telephone
-- Depeche Mode
You know you have an issue that requires a conversation with a real live human. No phone tree -- also called Interactive Voice Response, Integrated Voice Response, IVR, or not another freaking robot maze that is going to misunderstand my voice and will not let me go back if I hit the wrong button and so help me if it cuts me off after waiting on hold for a half hour, again, I am going to send large quantities of dog feces to the company's CEO -- can possibly resolve your issue. In frustration you may yell "operator!" or "representative!" or mash the zero button repeatedly but that may not help.

There is a site that can help, the aptly named gethuman.com. It may help you get a human fast, or at least the most efficient way that others have found.

Friday, August 15, 2014

Absurdity Abounds

You look so absurd, you look so obscene!
Oh, why can't I live a life for me?
Why should I take the abuse that's served?
-- Ministry
I fear the term absurd has fallen out of favor. Maybe because in our (Western?) society, beliefs and views can no longer be explicitly called absurd as somehow they have become worthy of respect.

If you think all beliefs should be respected, that is absurd. Let me prove it: pick any historical leader who advocated for and perpetrated genocide of a group based on a stated belief that the target group deserved to be killed. Surely that belief is not worthy of respect.

So what beliefs are absurd to you? How do you evaluate a belief?